Kidney School™—a program of Medical Education Institute, Inc.

Module 14—Patient Rights and Responsibilities

Personal Action Plan

We're ready to wrap up this module. You probably have a lot more rights than you knew about before reading this module! This is good news, because knowing what your rights are allows you to use them to your benefit. And, of course, you benefit most when you use your rights responsibly. Let's review your Personal Plan, which you can use as a reminder of what you've learned. We suggest you print this page and put it in a notebook so you can look back at it and ask your health care team questions.

My Right to Information
I have the right to: My job is to:

Know about my health problem: my diagnosis, what I can expect, and my treatment options.

Learn all I can, decide what treatment I want, and:

  • Follow my meal plan and fluid limits
  • Take my medications
  • Come to my clinic visits on time
  • Get all my prescribed treatments
  • Report my symptoms or problems
  • Ask questions if I don't understand

A clean, well-run, adequately-staffed clinic that follows laws.

Be on time for my visits, and call if I have to be late or miss a treatment.

Care team members who wash their hands and put on clean gloves before touching me.

Ask my care team members to wash their hands and put on fresh gloves if they forget.

Ask health care workers about their training, and refuse treatment by a trainee unless a staff member is supervising.

Treat my clinic staff with respect, say "please" and "thank you", and wait my turn if my request isn't urgent.

Know the rules at my clinic.

Follow the rules—if I don't agree, I can talk to the staff, find another clinic, or try home dialysis.

Know how much my care will cost and what resources can help me pay.

  • Know my insurance coverage
  • Check my bills for errors
  • Pay my share
  • Tell my clinic if my insurance changes
  • Ask for help if I can't afford care

Know what drugs are prescribed for me, what they do, what side effects they may have, and what I should watch out for.

Ask my doctor or pharmacist about my drugs and take them:

  • At the right time
  • In the right dose
  • As prescribed
  • With or without certain foods

Know what to do in an emergency.

File a complaint or grievance if I feel my care is not safe or is not meeting standards for good care.

  • Write down my complaint
  • Talk to the person involved
  • Ask my social worker to help
  • Talk to the clinic administrator

Know what is in my medical chart.

Know my medical history, remind my doctor of my needs, and ask if something sounds wrong to me.

Complete an Advance Directive of my health wishes.

  • Give a copy of my Advance Directive to my clinic, my doctor, and my family
  • Be sure my doctor and the person I ask to act for me know my wishes and agree to follow them
My Right to Take Part in My Care and Treatment
I have the right to: My job is to:

Decide what treatment I want, and change treatments if I'm not happy.

Think through what I decide and learn enough to choose wisely.

Understand my lab tests and how their results guide my treatment.

Ask my doctor and team:

  • What tests I'm being given and why
  • What the results mean
  • How my test results will guide my care

Refuse treatments, drugs, or research that I don't want.

Know what I'm refusing, what my options are, and what will happen to me.

Have an interpreter if I can't hear or understand my care team.

Ask for an interpreter when I need one.

Have social work and dietitian services (if I'm on dialysis).

Ask for what I need, take notes, and ask follow-up questions as needed.

Get a second opinion.

Pay for the visit if my insurance doesn't cover it and talk to my doctor about my needs.

Not be discharged against my will except for medical reasons, for my own welfare or the welfare of other patients, or for non-payment.

File a complaint or grievance, and refer to Medicare's Conditions for Coverage, section 405.2138.

Transfer to another clinic.

Talk to my clinic, doctor, insurance company, or social worker about my other options.

My Right to Respect and Dignity
I have the right to: My job is to:

Be treated with consideration and respect.

Treat the clinic staff with respect, and respect the privacy and rights of others.

Receive medical care without discrimination.

File a compliant or grievance.

Medical privacy.

Ask for my medical records if I need them, keep my records private, and know my rights.

Map of ESRD Networks

Here is a list of all of the ESRD Networks, what states are covered by each, and their corresponding phone numbers:

Network 1 – Connecticut, Maine, Massachusetts, New Hampshire, Rhode Island, Vermont
Phone: (203) 387-9332

Network 2 – New York
Phone: (800) 238-ESRD (3773)

Network 3 – New Jersey, Puerto Rico, Virgin Islands
Phone: (609) 490-0310

Network 4 – Delaware, Pennsylvania
Phone: (412) 325-2250

Network 5 – Virginia, West Virginia, Maryland, District of Columbia
Phone: (804) 794-3757

Network 6 – Georgie, North Carolina, South Carolina
Phone: (919) 855-0882

Network 7 – Florida
Phone: (813) 383-1530

Network 8 – Alabama, Mississippi, Tennessee
Phone: (601) 936-9260

Network 9/10 – Illinois, Indiana, Kentucky, Ohio
Phone: (317) 257-8265

Network 11 – Minnesota, Michigan, North Dakota, South Dakota, Wisconsin
Phone: (651) 644-9877

Network 12 – Iowa, Kansas, Missouri, Nebraska
Phone: (816) 880-9990

Network 13 – Arkansas, Louisiana, Oklahoma
Phone: (405) 942-6000

Network 14 – Texas
Phone: (972) 503-3215

Network 15 – Arizona, Colorado, Nevada, New Mexico, Utah, Wyoming
Phone: (303) 831-8818

Network 16 – Alaska, Idaho, Montana, Oregon, Washington
Phone: (206) 923-0714

Network 17 – American Samoa, Guam, Mariana Islands, Hawaii, Northern California
Phone: (415) 897-2400

Network 18 – Southern California
Phone: (323) 962-2020

Page 43 of 45 | Further reading