Additional Resources
In addition to the free Life Options materials you can find at www.lifeoptions.org, the resources below may help you learn more about the topics in this module of Kidney School.
Materials
- Advance Directives, Dialysis Patient's Bill of Rights and Responsibilities, and Transplant Recipients Bill of Rights and Responsibilities, available from the National Kidney Foundation (NKF)
If you would like more information, please call 800-622-9010 or visit the NKF website at www.kidney.org and click on "Search by Letter". - Consumer's Tool Kit for Health Care Advance Planning, available from the American Bar Association's Commission on Law and Aging at www.abanet.org.
Websites
For more information about your rights and responsibilities as a person with kidney disease, visit the following websites:
- www.homedialysis.org – Home Dialysis Central
Has information about the five types of dialysis that can be done at home, and where to find them—plus patient stories, equipment, message boards, and much more. - www.kcercoalition.com – Kidney Community Emergency Response Coalition (KCER)
Learn what to do in case of an emergency. - www.practicalbioethics.org – The Center for Practical Bioethics
Provides Advance Directive and other information. - www.esrdnetworks.org – The Forum of End Stage Renal Disease Networks
- www.kidneyeol.org – Kidney End-of-Life Coalition
For more information on advance directives and end-of-life care for people with kidney failure. - www.medicare.gov/Dialysis/ – Dialysis Facility Compare
Medicare's website that will let you compare the quality of dialysis centers. - www.medicare.gov – Medicare
For general information about Medicare and its services. - www.medicare.gov/Contacts/ – Medicare
For contacts and questions. - www.medicare.gov/Health/ – Medicare
For dialysis publications.
Please note: Life Options does not endorse these materials. Rather, we believe you are the best person to choose what will meet your needs from these or other resources you find. Please check with your local library, bookstore, or the internet to find these items.